There are many concerning aspects to having epilepsy, and one of the most upsetting is its impact on the memory. Epileptic seizures interrupt brain function, and as a result they interfere with the memory process. Seizures may also cause physical damage to the parts of the brain that are tasked with storing or retrieving memories. (Oxford Academic)
What is Epilepsy?
People have varying degrees of understanding about epilepsy and the seizures that come with this central nervous system disorder. People who have epilepsy suffer from abnormal brain activities that lead to outcomes that vary, but which are all generally described as seizures. Though most people understand a seizure as an acute episode called tonic clonic and characterized by twitching and uncontrollable body movements, a seizure can be as mild as a loss of awareness. People may simply think that a person with epilepsy is simply daydreaming, while their staring blankly into space is actually what is known as an absence seizure in midstream. Once a person has two seizures, they receive an epilepsy diagnosis, even though they may never have another episode: others may suffer with constant and violent symptoms. (Centers for Disease Control and Prevention)
Though epilepsy is treatable, it is not curable. People diagnosed with the condition may only experience it fleetingly while others require lifelong treatment and may even require surgery to address significant and frequent seizures. Some children diagnosed with epilepsy outgrow the condition before they reach adulthood. A thorough workup of the disease will try to determine whether the condition is a result of genetics or of a brain injury of some type. Identifying the source of the condition and the specific epilepsy syndrome is essential to obtaining proper treatment (Epilepsy Foundation of Greater Chicago). [reference link no longer available]
The Brain and Seizures
Seizures occur in the brain as a result of complex chemical changes in nerve cells. In some cases the cells may engage in too little activity while in other cases they become overly excited and active. No matter what the circumstance, the result is an imbalance and a surge of electrical activity that leads to a seizure. (American Association of Neurological Surgeons)
A seizure is not a disease: rather it is a symptom of a problem within the brain. As is true of symptoms of other conditions, seizures can be mild or severe. An individual having a seizure may not even realize what is happening to them, and those around them may also be unaware. In other cases, seizures are extremely obvious, and can be frightening to observe. The difference in intensity and experience is largely a result of the part of the brain that is involved, and the same is true of a seizure’s potential impact on memory. The more frequently seizures occur, the more likely they are to cause memory problems, and the area of the brain that is involved will determine the type of memory problems a person is likely to experience.
Focal vs. Generalized Seizures
When a person experiences generalized seizures, the entire brain is impacted. By contrast, focal seizures impact a specific part of the brain. It is possible to have both focal and generalized seizures, and understanding the physiology of the brain and what its various parts do will help to understand the impact that a focal seizure can have on memory.
Both the left and right side of the brain have four lobes, referred to as the occipital lobe, the parietal lobe, the temporal lobe and the frontal lobe. People who experience memory problems following epileptic seizures are most often afflicted with seizures in the temporal or frontal lobes. (Mayo Clinic) This is because the left temporal lobe is responsible for creating and retrieving verbal memories such as facts and names, and the right temporal lobe is responsible for creating and retrieving visual memories like recognizing a person’s face or a route to a familiar place. Remembering to do something in the future, like a task or going to an appointment, is controlled by the frontal lobe. Damage to these areas of the brain will have a direct effect on the abilities of these essential memory functions. (Learning and Memory)
Though damage to the brain caused by seizures can cause long-term memory problems, some of the memory lapses that people experience are what is known as “post ictal confusion.” This is a temporary loss of memory. For those who have extremely mild symptoms, post ictal confusion may be the first indication that the person is suffering from seizures. In addition to having a hard time with memory, post ictal confusion is also characterized by extreme exhaustion and an overwhelming sense of needing sleep.
Is The Problem Memory, or Attention?
Though people who have epilepsy may feel that their memory is suffering, there are many who question whether the problem is one of storage and retrieval, or whether the problem may actually be a reduction of attentional speed or information processing. Studies have linked epilepsy directly to a reduction in the amount of information that can be processed in a given period of time, and this deficit has a direct impact on the ability to form memory. When a key element (or elements) of new information are missed because it is being delivered faster than it can be processed, it also cannot be absorbed. Epilepsy can also make an individual more distractible or more easily overwhelmed. Not actually taking information in may be experienced or interpreted incorrectly as a failure of memory. (Epilepsy Foundation) (link removed).
Is the Problem Memory, or Retrieval Speed?
Similarly, people with epilepsy may have properly encoded and stored information in their memory, but may have slowed retrieval as a result of either damage done to the brain or simple slowing of the retrieval process that has been associated with epilepsy. These individuals will be asked to respond to a question and be unable to do so in the moment and then come up with the answer a short time later. This may be a function of slowed processing speed or of the brain having gotten distracted, as is also common among those diagnosed with epilepsy.
Retrieval of memories can also be complicated by a need for greater context that is common among those diagnosed with the condition. Though isolated episodes can be hard to retrieve, providing greater context or relationships for retrieval may be necessary in order for the memory to be evoked.
Epilepsy Drugs and Memory
In addition to the physical damage caused by epileptic seizures and the impact that the disease itself can have on brain function, it is also important to remember that many of the drugs that are prescribed to prevent epileptic seizures may have an impact on memory. These anti-epileptic drugs may create challenges for your ability to concentrate or may simply make you too drowsy to be able to properly encode information in our short-term memory, and therefore to learn and later retrieve new information. (WebMD)
9 Comments. Leave new
Hi, i had a seizure or wat seemed to be a seizure. Since this was the 1st time this occurred my husband rushed me to the casualty. The doctor could not give a diagnosis. He claimed it could be heart related bt ecg results came back inconclusive. However my query is even tho i blacked out i cud hear everyone speaking to me bt cud nt respond bt i cannot remember wat happened since the black out till a few hours later. Ive had headaches b4 that left me with a similar blank space. Unfortunately no one can tell me wat is causing these episodes
Just recently had several seizures. Had only had one other seizure in my life and I’m 46. My memory loss has been very profound for me. I couldn’t remember where I lived, some of my friends, or even who my grandchildren were. I literally lost about 2 weeks of time and that has been Scarry as hell.
Hi Brian. I hope you’re doing well now. My boyfriend had a seizure yesterday and went through the exact same thing. He couldn’t remember anything, like who he was or any details about us or his life. He has epilepsy but rarely gets seizures and it’s never been this serious. It was terrifying but he began to regain his memory after a couple of hours and is doing much better now. Mind if i ask what your diagnosis was?
Hi,
I was under treatment for epilepsy from very young age may after I turned 4 years. I was under treatment for 7 years or more as I could remember. I am 34 years old now. I was an average student at studies through out my school and college days. Recently I went for a meditation class and they asked all of us to go back to the past and remember the things from each stage of our life from childhood one by one. As I tried to remember I was able to recollect only couple of incidents in 10 to 12 years of time. I was totally lost. Though I remember few of friends name I could not recollect their faces. As I progressed to remember the later stages of life it is the same, I am not able to remember even most happiest of the incidents fully. I am like totally lost the past and no worries about the future. It is just like living the present. But I remember the practical things I learned and most of the theoretical things I am forgetting. I am not able concentrate on things for longer time. I tried to finish it quickly and go to the next thing. So when some tasks are getting delayed I leave it without completing. I was thinking it is related to ADHD. Was it all because of the medications I was taking daily for so many years. After 8th grade onwards I started hating medications and till now I do not take any oral medications other than any natural herbs. I am confused why I am not able to recollect my memories from my past. When I sleep or have a shower early morning few things I recollect and plan for the future but afterwards everything is blank. Nothing running in my mind. Any task given I work on that. Nothing else. Why is this? Any explanations?
WOW your description of what happened to you is so much like my own its alarming. I have been searching for answers for a while now, I feel like I am missing my past, I can recall a couple specific memories, but I feel like I don’t really remember those incidents, I have just told the story so many times that I can spit it out at will. I have no recollection of ever being in my high school or middle school, no memories of birthdays or Christmas, I know certain things happened because of pictures or them being told to me, but its like it happened to someone else, none of it feels real. I feel like my life was taken from me. I try to talk about it but people look at me like I’m nuts. I would love to speak to you directly if possible, but just knowing I am not alone is a huge relief. If you want to reach out to me, my email is [email protected].
I think we’re on the same boat. Now trying to catch up and put the pieces of my past together. I no longer have grand-mals and “seizure-free” for almost 20 years. But a weak memory and moments of forgetting what tasks I’m working on is a daily thing for me. And you’re right…people don’t get it. They think you’re weird or nuts… just don’t know where to begin telling them or how it may they will view you at work.
hi nice talkin about seizures
I’ve had epilepsy my whole life. Where I just blank out for a minute or two (So don’t drive like I used to). They put me in the hospital to see what part of the brain it’s coming from took me off all my medication so I could have a seizure (that I normally don’t have) and they found it’s my left temporal. And they would like to do brain surgery and remove the part that it is in however I feel that every part of your brain does a bodily functions and I won’t have any part of it. It does get pretty scary But my husband always can detect when it will happen. Im on a lot of medication But I do feel as I’m getting older my memory is not all there and it’s scary.
I’ve had epilepsy since 1995(i was 8 years old ) when I got diagnosed. I have several types of seizures. My memory sux so bad sometimes I can’t remember the simplest things.